Creation of the Portuguese Urticaria Patients Association
PPL Causas

Creation of the Portuguese Urticaria Patients Association

The campaign aims to finance the creation of the Portuguese Association of Urticaria Patients, with the main objective of increasing the visibility of the disease and defending ...

  • 1820

    raised

    121% of 1 500€

    52 backers

  • 21/09/2020

    Expired on

  • Completed

    This project has been successfully funded

The campaign aims to finance the creation of the Portuguese Association of Urticaria Patients, with the main objective of increasing the visibility of the disease and defending the interests of patients in Portugal.

There are no specific data for Portugal, but based on international studies it is estimated that chronic urticaria affects up to 1% of the population at any given time, with about 2/3 of the cases having spontaneous urticaria. About 20% of the population suffers at least one episode of urticaria and 0.5 to 1% suffer from chronic urticaria, with an average duration between 1 and 5 years and a higher incidence in women between 20 and 40 years.

This disease affects negatively and significantly the quality of life of patients and is associated with high direct and indirect costs. As a psychologically debilitating disease and with a significant socioeconomic impact, it is essential to create an association to help promote the dissemination of the disease, its causes and treatments while defending the interests of these patients.

About the disease:

Urticaria is the manifestation of a heterogeneous group of diseases and is characterized by the appearance of reddish lesions on the skin that disappear with digital pressure, and which make it very itchy. The lesions last a maximum of 24 hours, regress without any residual injury but are recurrent, appearing in different parts of the body. When deep skin structures are involved, swollen lesions (angioedema) can appear.

According to the European Academy of Allergology and Clinical Immunology (EAACI), urticaria (and / or angioedema) is classified as acute urticaria, if it lasts up to 6 weeks and chronic urticaria (UC) if the duration is equal or longer to 6 weeks. Chronic urticaria can be induced (UCI) if an external factor, physical or not, is identified and chronic spontaneous urticaria (ECU), when an external stimulus is not identified. Thus, there are chronic urticaria induced by cold, pressure, increased body temperature, contact with water, etc., while in the case of spontaneous chronic urticaria studies indicate that in its genesis there may be an autoimmune / autoinflammatory basis.

More information:

[YOUTUBE: P9jAYn3x5RM]

About the author

My name is Mónica Albuquerque, I am 43 years old, I live in Oeiras. I have a master's degree in Marine Ecology and I have been working as a marine biologist, communicator and science educator since 2009. I have been suffering from Chronic Urticaria since early 2017. Chronic Urticaria is a difficult to diagnose disease and therefore, until I knew the name of the disease, I had consulted several doctors and tried different medications. This is very common for patients with the disease, taking years to find the name of their disease, the right doctor to accompany them and the right medication. It is due to the immense difficulties caused by the patients of Urticária Chronic that I became interested in the disease and invested in its dissemination, managing since the beginning of 2019 the Facebook page Urticária Crónica Portugal, as well as creating the Facebook group Urticária Crónica Portugal that has helped patients in throughout the country to obtain information, medical contacts and advice. One of the objectives of the creation of the group was to gather people / contacts for the creation of the Association, which only depends on funding at this moment.

Linkedin: https://www.linkedin.com/in/monica-albuquerque1977/

Budget and due dates

Budget:

Campaign Goal - 1500 €

PPL commissions and partners (*) - 138.38 €

Value for the creation of the Association: € 1361.63

- Certificate of Admissibility of Denomination - 75 to 150 €

- Holding of Constitutive Assembly - Meeting of the general constitutive assembly in which the interested members participate and which is essentially intended to deliberate the constitution of the association and to approve the respective statutes, as well as to mandate one or more associates for the celebration of the public deed. The meeting, including the appointment of the representatives (s), will be recorded in the minutes. - 50 to 100 € (room reservation)

- Public Deed and Registration - 350 to 500 €

- 1st General Assembly for election of corporate bodies - 50 to 100 € (room reservation)

- Bank account creation - minimum amount required by the bank to create an Association account - 500 € (which can then be used, for example, when creating the website)

- Registration in finance - free

- Registration and website creation - 100 eur

Extra amounts raised in this campaign will be deposited in the association's account and used in the first activities of the association.

Calendar

Fundraising - 30 days

Admissibility Certificate of Designation - September 2020

Constituent Assembly held - September 2020

Public Deed and Registration - October 2020

General Assembly for election of governing bodies - October 2020

Bank account creation - November 2020

Registration in finance - November 2020

(*) PPL commission, which is 5% + VAT. The second is 2.5% + VAT, and serves to cover the fees of payment partners (PayPal, ATM References, etc.).

  • Invest with
    5€ or more

    What a good idea this campaign!

    Whoever supports this campaign with a value between € 5 and € 9 will receive a thank you on the social network FB at the end of the campaign!

    17 backers

  • Invest with
    10€ or more

    We support the creation of this Association

    Whoever supports this campaign with a value between € 10 and € 19 will receive a thank you on the social network FB and on the future website, at the end of the campaign!

    19 backers

  • Invest with
    20€ or more

    We love the creation of this Association

    Whoever supports this campaign with a value between € 20 and € 49 will receive a thank you on the social network FB, on the future website and sending digital proof of solidarity at the end of the campaign!

    14 backers

  • Invest with
    50€ or more

    We think the creation of this Association is critical

    Whoever supports this campaign with a value above 50 € will receive a thank you on the social network FB, on the future website, sending digital proof of solidarity at the end of the campaign and the possibility of becoming a member of the Association with a paid first year quota!

    5 backers

Sat, 31/10/2020 - 07:27

Mon, 28/09/2020 - 18:54

Como sabem a campanha de

Como sabem a campanha de angariação de fundos para a criação da Associação Portuguesa de Doentes de Urticária terminou com sucesso na passada semana. É com o ❤ cheio que agradec...

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Thu, 24/09/2020 - 10:35

Payout completed

The raised funds have been transferred to the campaign owner

21/09/2020

Campaign ended

The campaign successfully raised the initial target

Mon, 14/09/2020 - 16:23

100%!

Atingimos o objetivo para a criação da Associação! Esta irá ser criada graças às vossas contribuições e muito temos a agradecer à generosa contribuição efetuada hoje de manhã, ...

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Mon, 14/09/2020 - 10:26

100% reached

WE DID IT! We met our initial target but the fundraising can continue

Wed, 09/09/2020 - 08:25

Agradecimento e pedido de ajuda na divulgação

Bom Dia Venho agradecer o vosso apoio à campanha em curso. Muito obrigada! Peço-vos que divulguem pelos canais que vos forem possiveis a nossa campanha pois segundo consta a...

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Sat, 22/08/2020 - 13:54

We're now 20

We reached the first 20 backers. Let's keep up!

Campaign launched

18/08/2020

Join us so you can take a part in this campaign. Register

  • Mónica Albuquerque

    Como sabem a campanha de

    Como sabem a campanha de angariação de fundos para a criação da Associação Portuguesa de Doentes de Urticária terminou com sucesso na passada semana. É com o ❤ cheio que agradecemos a todos os que tornaram possivel esta realidade e que constam na lista abaixo. Muito Obrigada pela vossa confiança.
    Aproveito para informar que foi hoje submetido ao Instituto dos Registos e do Notariado, I.P. o pedido de Certificado de Admissibilidade do nome da Associação via Portal da Empresa. (Número do Pedido: 2789438)
    Ana Cristina Garcia
    Ana Simões
    Ana Sofia Paulino Afonso
    Anabela Gil da Silva
    Andreia Afonso
    Carla Reis
    Cassia Mayra Duarte Ruivo
    Claudia Conde de Almeida Afonso
    Cláudia Nunes Agostinho
    Cláudia Sofia Matos Carrasqueira
    Cristiana Rodrigues Tristão Marques Cera
    Cristina Correia
    Dario Item
    Dulce Maria
    Fernanda Croca
    Filipa Garcia Dias
    Helena Santos
    Jaime Melancia
    Joana Filipa de Sá Oliveira
    Joana Lírio
    João Tiago Teixeira
    Luís Paulos
    Maria José Correia
    Maria Manuela Bento Mourão
    Maria Manuela Correia Marques
    Marta Manuel Ferreira
    Marta Pisabarro Antunes Ferreira
    Mónica Albuquerque
    Nádia Antunes
    Odete Reis
    Patricia Bela Cardoso
    Patricia Simões
    Pedro Cardoso
    Rita Gomes
    Rita Valejo Sintra
    Rute Dolores
    Sandra Oliveira
    Sara Ferreira
    Sara Matos
    Sonia Alexandre
    Soraia Alexandra Gamito Pereira
    Susana Santos
    Suzana Belo
    Tânia Piedade
    Teresa Maria Duarte Lourenço
    Vera Cristina Raposo Bejinha
    Vera Fialho Horta
    Vera Marques
    4 donativos anónimos

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  • Mónica Albuquerque

    100%!

    Atingimos o objetivo para a criação da Associação! Esta irá ser criada graças às vossas contribuições e muito temos a agradecer à generosa contribuição efetuada hoje de manhã, que permitiu passar dos 33% para os 100%
    Pedimos assim a vossa ajuda na divulgação para um novo objetivo, divulgando o site da campanha (https://ppl.pt/apdu).
    Podemos sonhar com os restantes eur vindos de novos contribuidores? Para que seja possivel realizar mais atividades de divulgação da doença? Contamos convosco! Partilhe. Obrigada!

    Ps: Caso alguem que conheçam queira contribuir e precise de uma referência multibanco para o fazer basta contactarem-me por email para urticariacronicaportugal@gmail.com (já que a referência tem de ser gerada para cada caso). Obrigada! Mónica Albuquerque

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  • Mónica Albuquerque

    Agradecimento e pedido de ajuda na divulgação

    Bom Dia

    Venho agradecer o vosso apoio à campanha em curso. Muito obrigada!
    Peço-vos que divulguem pelos canais que vos forem possiveis a nossa campanha pois segundo consta a maioria dos donativos se fazem nesta última fase de recolha.
    Divulguem junto de amigos, nas vossas redes sociais, junto de pessoas influentes que possam conhecer, tiverem alguém conhecido na comunicação social e que possa fazer uma pequena noticia. Tudo ajuda!
    O link a divulgar é este: https://ppl.pt/apdu
    Recolhemos até à data 30% do valor (458 de 1500 eur)
    Obrigada!

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52 members of the PPL community
support this campaign

  • 47
    new backers

  • 5
    recurrent backers

  • 4
    anonymous backers

Meet the people helping this dream come true