Santiago needs a new transport seat.
My son has a very rare genetic syndrome, MECP2 Duplication Syndrome, which has several associated symptoms, developmental delay, both motor and cognitive, does not walk alone, does not speak, has respiratory problems, because he is hypotonic he has very respiratory infections. frequent, has sleep apnea and therefore has to sleep ventilated by a b-pap. He was recently diagnosed with epilepsy, which is not yet under control.
From a very early age, we bet on their rehabilitation. At 8 months I was already attending several therapies and over the years we have been looking for more and new therapies. It has gone very well, Santi has already taken a few steps, he learned to communicate through a communication notebook, which started to be insufficient and we started a new form of communication, PODD, which will allow Santi to communicate with us in the long term. . It has an almost perfect posture. All these therapies together weigh too heavily on our family budget, they are not reimbursed, but what keeps us hopeful is the fantastic results he has had over the years.
Despite all the bad moments, Santiago has a physical development equal to any other child. The adapted cart that Santi has is getting too small and we need to buy another one.
The objective of this campaign is to acquire the chair so that Santi can have even more superpowers. After all, not all superheroes use their legs to walk, some use their super chairs.
Santiago nas terapias
