May the smile of happiness always be superior to the pain of sadness.

I have Fanconi Anemia and I am currently going through a very bad phase in my life, domestic violence is one of the biggest factors that makes me very sick, my traumas slowly kill me because I never know what to expect from my father.

Hello, my name is Liliana Silva, I am 29 years old and I still live with my parents because I am not physically able to work, I was diagnosed in January 2023 with avascular necrosis of the femoral head due to a clot in the bone due to taking corticoids for more than 1 month and because of a pill, as it is not known for sure what caused the necrosis, I cannot complain to the health professional. I've been in bed and getting around even turning over in bed is extremely unbearable, the pain is horrible.

At the age of 5 I was diagnosed with Fanconi Anemia at the hospital in São João do Porto, and my brother was diagnosed at birth. Fanconi Anemia is a rare and hereditary blood disease , that is to say, it prevents the bone marrow from producing new blood cells in sufficient numbers so that our organism can work normally, which causes twice as much tiredness, all the time . carrier is easily prone to cancer , both skin, head, lungs etc. Our bones can have problems in growth and formation, as well as some organs (example: Kidneys). I'm 1.52, at 14 I stopped growing and one of the thumbs had no bone (for that reason they removed it), the other thumb is crooked, as well as I have smaller and closed eyes (Asian), spots on the skin, I have more than 1000 spots and I have visual and hearing problems. I am accompanied in the hematology consultation, one of the best doctors who took care of me was the hematologist Dr. Barbot of the Maria Pia hospital. When I was in the hospital for the bone marrow transplant, the values went up and the surgery was cancelled. I have scoliosis , asthma , bronchitis , muscle problems , tendons , ovaries , bladder , intestinal problems, migraines , diabetes , I also have dilated vessels in the head, lots of food allergies among other problems. I also have psychological problems, as I was diagnosed with deep depression , OCD (Obsessive Compulsive Disorder), anxiety and suicidal tendencies . I had been diagnosed in January with Avascular Necrosis of the femoral head, but then I was diagnosed with two , that is, both femoral heads are necrotic and have already collapsed , now it will be necessary to replace both heads with prostheses. However, I will explain why they didn't do something right away when it was detected, due to Fanconi's Anemia several medications and treatments cannot be done , as well as others do not work , so the only way was to wait for the bone to collapse, yes, it is very painful the whole process, but unfortunately it's the only thing that can be done. At the time I was diagnosed with Avascular Necrosis, I was also diagnosed with two inguinal hernias, but I was operated on and everything went well.

My father is very violent with us (me, Mother, Brother and maternal Grandparents), he forbids us to have any visitors in the house, he controls the money, he controls my Mother, he is always very angry with everything we do. He even makes death threats , that he'll set the house on fire with all of us inside if Mother doesn't allow him to sell the house.

Oh sorry, I had forgotten to explain why the grandparents are with us, my Grandfather has Alzheimer's and is bedridden, and my Grandmother had a stroke and has dementia.

Through this campaign I come to ask the help of each Angel who can do it, I can't work and for that reason I can't even have money for exams that I sometimes need to do, as well as helping my mother who unfortunately is on sick leave due to several problems in one foot, which meant that we had almost no money to spend the months.

About the author

My name is Liliana dos Anjos Vieira da Silva, I was born on 12/11/1993 in the city of Braga. I have a younger brother who is 19 years old. I live with my parents in the same city where I was born. I don't currently work, but I've worked for APAV and Telepizza in Braga Shopping. I took the Sociocultural Animation course and did an internship at Colégio Teresiano (Braga) and Fundação Bonfim (also in Braga)

I love music, acting and helping, helping makes me smile and feel good about myself, I have a huge dream of traveling to some countries, but above all I dream of being happy, and I'm really not happy, I still have many reasons to smile, after all, I have a Mother and a Brother who really love me a lot and Grandparents who gave me the best childhood and were always my friends.

Budget and due dates

I run this campaign to raise money so you can help me with:

• Paying household bills;

• Medical expenses, exams that I sometimes need to do more urgently and for that reason I need to do them outside the public hospital; (Hospital Santo Antônio do Porto.)

• Some walks I liked to take with my mother and brother. (In particular outside Braga)

Images

Documents

• Coloco este áudio que é parte do que aconteceu no dia 29 de Julho. Tenho mais 2 áudios.

  mpeg • 6.18 MB