Tatiana's smile
PPL Causas

Tatiana's smile

A smile doesn't show what Tatiana and her family endure every day. Tatiana has a rare disease and is totally dependent. Monthly expenses with therapies are around €500. Not ...

  • 24357

    raised

    244% of 10 000€

    2251 backers

  • 01/06/2023

    Expired on

  • Completed

    This project has been successfully funded

A smile doesn't show what Tatiana and her family endure every day. Tatiana has a rare disease and is totally dependent. Monthly expenses with therapies are around €500. Not having this value means losing what you have already acquired

Imagine a 9 year old blonde girl. With eyes so light you can't even tell what color they are. A contagious smile that will be her best way of communicating with her parents and siblings... because, among other difficulties, Tatiana doesn't speak. Carrier of a rare disease, with a disability of 95%, Tatiana is totally dependent for the routines of everyday life. Monthly expenses with therapies and consumables are around 500 euros and not supporting this amount means that Tatiana may be left without what she has already acquired and become increasingly isolated from her family. In fact, one of the fears is that he will stop walking if he doesn't continue with the therapies. We don't want that to happen. We want to give Tatiana, siblings and parents at least one more peaceful year.

Tatiana has been diagnosed with Rett Syndrome. This Syndrome is a genetic disease, which brings with it a series of other diseases, such as autism, epilepsy, cerebral palsy, non-verbality, they lose skills throughout their lives, they have changes in sleep and body weight, loss of ability to use of hands with purpose, loss of gait, anxiety disorders, heart and breathing problems, Parkinson's among many others.

She is totally dependent for the routines of everyday life, having severe motor complications that compromise walking, sphincter control, chewing, breathing, swallowing, among many others. In order to maintain her quality of life, Tatiana has to have several Therapies that allow her to maintain her quality of life and prevent her from losing the skills she has acquired so far.

O sorriso da Tatiana

The therapies that Tatiana must maintain are:

*PHYSIOTHERAPY TWICE A WEEK – PHYSIOZEN PÊRO PINHEIRO (Nadine Silva, Tatiana's physiotherapist since 2015) , Monthly fee: €120

*OCCUPATIONAL THERAPY 1 TIME A WEEK – At APERSIM in Mafra

*HYPOTHERAPY 1 TIME A WEEK from the age of 3 – Currently at the Picadeiro Arena Lusitana Monthly Price: 110€

*SWIMMING 1 TIME A WEEK in Ericeira municipal swimming pools Monthly Fee: 12€

*PSYCHOMOTRICITY IN THE WATER ENVIRONMENT 1 TIME A WEEK at Associação Dom Maior, in Lisbon Monthly Fee: 140€

Apart from the therapies available at APERSIM, which are facilitated by the Ministry of Education, the family has to support the rest monetarily, which implies a very demanding monthly effort

We can provide copies of the invoices for the different interventions, if necessary.

It is also necessary to acquire 2 pairs of orthopedic shoes annually – Winter and Summer, which give you the stability and rigidity necessary to guarantee the maintenance of a quality gait, without aggravating shortenings and scoliosis for as long as possible.

The regular transport chair is no longer serving, given that Tatiana is growing up, and therefore we are in the process of acquiring a new one, adapted for teenagers/adults. These are chairs that have very high costs (between €3500 and €6000).

Tatiana precisa de umas novas botas para manter a sua marcha sem dores

About the author

The promoters of this campaign are friends and acquaintances of Tatiana's family, including the comedian António Raminhos, I am writing to you and promoting this campaign. By the way, it's not the first campaign I've done :) The photos were taken by a friend, exclusively, for this campaign as well. We know Tatiana and are well aware of the needs of this family. It's completely reliable. Tatiana's mother does not work to be able to accompany her daughter to the therapies and there is little aid from the State.

Tatiana e a mãe que não trabalha para poder levar a filha às terapias

Budget and due dates

The amount raised will be used to pay for one year of therapies and consumables:

*PHYSIOTHERAPY TWICE A WEEK – PHYSIOZEN PÊRO PINHEIRO (Nadine Silva, Tatiana's physiotherapist since 2015) , Monthly fee: €120

*OCCUPATIONAL THERAPY 1 TIME A WEEK – At APERSIM (paid) in Mafra with Therapist Ana Margarida.

*HYPOTHERAPY 1 TIME A WEEK from the age of 3 – Currently at the Picadeiro Arena Lusitana Monthly Price: 110€

*SWIMMING 1 TIME A WEEK in Ericeira municipal swimming pools Monthly Fee: 12€

*PSYCHOMOTRICITY IN THE WATER ENVIRONMENT 1 TIME A WEEK at Associação Dom Maior, in Lisbon Monthly Fee: 140€

We can provide copies of the invoices for the different interventions, if necessary.

Acquisition of 2 pairs of orthopedic shoes annually – Winter and Summer. We can provide a copy of the prescriptions of the physiatrist who accompanies her in Santa Maria, for these shoes, as well as the invoice for them.

Adapted transport chair, between €3500 to €6000

  • Invest with
    20€ or more

    T-shirt with Tatiana's design

    A tshirt with a drawing of Tatiana

    Postman/courier or hand-delivered
    Shipping included (to Portugal)

    203 backers

  • Magic Dreamcatcher

    Invest with
    30€ or more

    Magic Dreamcatcher

    Tatiana's mother offers a Magic Dream Catcher designed and made by her :)

    Postman/courier or hand-delivered
    Shipping included (to Portugal)

    60 backers

  • forest fairies

    Invest with
    60€ or more

    forest fairies

    A crochet doll (15 cm) made by Tatiana's mother

    Postman/courier or hand-delivered
    Shipping included (to Portugal)

    17 backers

  • A retty box

    Invest with
    200€ or more

    A retty box

    A little box that turns into your little Princess Retty's little house 💜 easy to transport, to create all the magical stories of your best friend!!!

    Postman/courier or hand-delivered
    Shipping included (to Portugal)

    8 backers

Tue, 27/02/2024 - 03:39

Mon, 12/06/2023 - 16:48

Payout completed

The raised funds have been transferred to the campaign owner

01/06/2023

Campaign ended

The campaign successfully raised the initial target

Fri, 05/05/2023 - 23:07

100% reached

WE DID IT! We met our initial target but the fundraising can continue

Fri, 05/05/2023 - 21:25

We're now 20

We reached the first 20 backers. Let's keep up!

Tue, 02/05/2023 - 17:42

First five backers

We've gathered the first 5 backers. Hurray!

Campaign launched

02/05/2023

2251 members of the PPL community
support this campaign

  • 1906
    new backers

  • 345
    recurrent backers

  • 1075
    anonymous backers

Meet the people helping this dream come true