The Cui(Dar) a Quem Cuida Project aims at the assistance and occupation of children with disabilities by specialized nurses, but also at the rest of the caregivers.
Pedro has a rare neuromuscular disease. Pedro's mother became pregnant with João and while the parents were in the maternity ward for João's birth, brother Pedro was in the care of Rising Child nurses (as well as other family members and friends). Thus, Pedro's main caregivers went to receive João calmly, while Pedro had all the specialized care that is usually provided by parents. It was a joy to bring these brothers together!
The Rising Child Association intends to provide a differentiated and specialized intervention network that aims to provide care in a home context. Bearing in mind that the beneficiaries are disabled and have special health needs, this assistance will be provided by nurses and specialized assistants.
With the implementation of this Project, the Rising Child Association intends to achieve two general and elementary objectives: to contribute to a more inclusive society and to contribute to improving the quality of life of children with disabilities and their families , providing rest to the caregiver and improving proprioceptive work. of children.
The Cui(Dar) a Quem Cuida Project aims not only at the assistance and occupation of children with disabilities, but also at the caregiver's rest, particularly important given the emotional overload and exhaustion that some families with children with disabilities face.
This type of response, increasingly developed for informal caregivers of sick adults, does not exist for caregivers of children with disabilities, in much of the national territory. Thus, they will be able to use this time for other purposes related to their health and physical, psychological, emotional and/or occupational well-being.
The Project is divided into three particularly important phases, governed by home support for children with disabilities:
- In the first phase , the team will be presented, which includes a circumstance for interaction, adaptation and mutual knowledge, which will favor trust between the child, caregivers and technicians;
- In the second phase , the diagnosis of the surroundings will be carried out, which enables the construction and identification of architectural barriers and the perception of family dynamics;
- The third phase takes the form of creating bonds of trust at home. This is a step considered vital for the well-being, health and comfort of both direct beneficiaries - children with disabilities - and indirect beneficiaries - informal caregivers/their families.
Initially, we will support three pilot families and, in a future phase, the objective is to support 6 families.