MOWAT-WILSON SYNDROME EUROPEAN CONFERENCE
Portugal will host the first European conference on Mowat-Wilson syndrome. This is an unique opportunity to give visibility to this pathology and voice to patients suffering from it in Portugal, Europe and the world.
The event, which will take place on June 22nd and 23rd at the Cultural Center of Cascais, will count on the confirmed presence of both clinical geneticists who have discovered and named this syndrome: David Mowat and Meredith Wilson. The participation of other nationally and internationally renowned specialists in this area is also foreseen.
Among the participants are families from several countries, including Spain, France, England, Italy, Holland, Germany, Cyprus, Greece, Canada, United States of America, Brazil, Israel and Morocco.
Due to all this, and given the international nature of the event, it was decided to translate simultaneously in four languages during the two days of work, so that all families had this unique opportunity to know more about this syndrome.
An option that is reflected in the costs associated with the organization / logistics of the conference, which represents a significant increase of the same. But that is also the only way to ensure the presence and the essential testimonies of families and experts coming from outside the country.
We have developed this campaign to try to cover 35% of the cost of simultaneous interpretation (Equipment + Interpreters).
We count on your help.
About the author
ASMW - Associação Sindrome Mowat-Wilson
Respond to the need to develop and deepen knowledge and research on Mowat-Wilson syndrome, creating conditions to aggregate and disseminate more and better information about this disease.
- Be an independent and transparent Association.
- FOCUS in the reason of our existence: MWS carriers.
Be a national benchmark and cross-border in the development and sharing of information and knowledge about Mowat-Wilson syndrome.
To be the main vehicle of information in Portugal regarding to MWS.
Develop activities (eg. conference, among others) with the main intention of encouraging the sharing of information about this disease.
Rui Negrão (father of Maria, kid with MW syndrome)
Dra. Oana Moldovan (Pediatric Medical Assistant in Medical Genetics)
Inês Munhá (Educational Psychologist)
Sandra Calheiros (mother of Maria, kid with MW syndrome)
Sílvia Castro (mother of Maria Rita, kid with MW syndrome)
Dr. André Graça (Graduate Pediatric Medical Assistant in Pediatrics)
Pedro Oliveira (father of Maria Rita, kid with MW syndrome)
Virgínia Lourenço Marques (Pediatric Physiotherapist)
Sílvia Ramos (Nurse)
Dra. Ana Saianda (Pediatrics Medical Assistant)
Nuno Pires (Accountant)
More Information: http://www.mowat-wilson-portugal.org/associacao/
Budget and due dates
This fundraising initiative is exclusively for the Simultaneous Translation of the event, which will be translated into 4 languages.
Equipment: 1950 € + VAT
Translators: 6560 € + VAT