MOWAT-WILSON SYNDROME EUROPEAN CONFERENCE - Lost in Translation -
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  • Cascais, Portugal

MOWAT-WILSON SYNDROME EUROPEAN CONFERENCE - Lost in Translation -

MOWAT-WILSON SYNDROME EUROPEAN CONFERENCE

  • 3835

    raised

    100% of 3 830€

    76 backers

  • 22/06/2018

    Expired on

  • Completed

    This project has been successfully funded

MOWAT-WILSON SYNDROME EUROPEAN CONFERENCE

Portugal will host the first European conference on Mowat-Wilson syndrome. This is an unique opportunity to give visibility to this pathology and voice to patients suffering from it in Portugal, Europe and the world.

The event, which will take place on June 22nd and 23rd at the Cultural Center of Cascais, will count on the confirmed presence of both clinical geneticists who have discovered and named this syndrome: David Mowat and Meredith Wilson. The participation of other nationally and internationally renowned specialists in this area is also foreseen.

Among the participants are families from several countries, including Spain, France, England, Italy, Holland, Germany, Cyprus, Greece, Canada, United States of America, Brazil, Israel and Morocco.

Due to all this, and given the international nature of the event, it was decided to translate simultaneously in four languages during the two days of work, so that all families had this unique opportunity to know more about this syndrome.

An option that is reflected in the costs associated with the organization / logistics of the conference, which represents a significant increase of the same. But that is also the only way to ensure the presence and the essential testimonies of families and experts coming from outside the country.

We have developed this campaign to try to cover 35% of the cost of simultaneous interpretation (Equipment + Interpreters).

We count on your help.

About the author

ASMW - Associação Sindrome Mowat-Wilson

Mission:

Respond to the need to develop and deepen knowledge and research on Mowat-Wilson syndrome, creating conditions to aggregate and disseminate more and better information about this disease.

Values:

INDEPENDENCE, TRANSPARENCY

  • Be an independent and transparent Association.

FOCUS

  • FOCUS in the reason of our existence: MWS carriers.

Vision:

Be a national benchmark and cross-border in the development and sharing of information and knowledge about Mowat-Wilson syndrome.

Goals:

  • To be the main vehicle of information in Portugal regarding to MWS.

  • Develop activities (eg. conference, among others) with the main intention of encouraging the sharing of information about this disease.

 

Members:

Rui Negrão (father of Maria, kid with MW syndrome)

Dra. Oana Moldovan (​​​Pediatric Medical Assistant in Medical Genetics)

Inês Munhá (Educational Psychologist)

Sandra Calheiros (mother of Maria, kid with MW syndrome)

Sílvia Castro (mother of Maria Rita, kid with MW syndrome)

Dr. André Graça (​​​​Graduate Pediatric Medical Assistant in Pediatrics)

Pedro Oliveira (father of Maria Rita, kid with MW syndrome)

Virgínia Lourenço Marques (Pediatric Physiotherapist)

Sílvia Ramos (Nurse)

Dra. Ana Saianda (Pediatrics Medical Assistant)

Nuno Pires (Accountant)

More Information: http://www.mowat-wilson-portugal.org/associacao/

Budget and due dates

This fundraising initiative is exclusively for the Simultaneous Translation of the event, which will be translated into 4 languages.

Equipment: 1950 € + VAT

Translators: 6560 € + VAT

  • Invest with
    10€ or more

    Contribute to the value you want for this cause, and always receive updated information.

    39 backers

  • Invest with
    25€ or more

    Contributing with equal or greater value will be mentioned on the communication during the event.

    13 backers

  • Invest with
    50€ or more

    Contribute with equal or greater value, will be mentioned in communication during the event itself, and on the website www.mowat-wilson-portugal.org.

    9 backers

  • Invest with
    100€ or more

    Contribute with equal or greater value, will be mentioned as PARTNER in the communications related to the event; in communication during the event itself, and on the website www.mowat-wilson-portugal.org.

    11 backers

Fri, 29/05/2020 - 06:50

Tue, 26/06/2018 - 15:58

Payout completed

The raised funds have been transferred to the campaign owner

22/06/2018

Campaign ended

The campaign successfully raised the initial target

Mon, 18/06/2018 - 00:59

Contribuição Associação Mowar-Wilson

Olá!!! Em primeiro lugar, queremos agradecer o apoio dado à associação, para que muitas famílias europeias (e não só) possam aproveitar da melhor forma a conferência com as res...

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Campaign launched

07/05/2018

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  • Rui Negrão

    Contribuição Associação Mowar-Wilson

    Olá!!!
    Em primeiro lugar, queremos agradecer o apoio dado à associação, para que muitas famílias europeias (e não só) possam aproveitar da melhor forma a conferência com as respectivas traduções.
    Nesta recta final, queremos pedir mais um favor :) Para quem não o fez, pedimos que mudem o apoio para incondicional. Isto permitirá receber o valor doado, mesmo que não se atinja a totalidade.
    Para tal, basta aceder a este link: https://ppl.com.pt/user/contributions (com sessão iniciada) e mudar para apoio incondicional.
    Muito obrigado

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