Scientists running through Ataxias
PPL Causas

Scientists running through Ataxias

Group of researchers from the University of Coimbra who got together to run for hereditary ataxias (APAHE) in the European Marathon in Aveiro, on April 23, 2023.

  • 534

    raised

    107% of 500€
    Stretch target 1 000€

    57 backers

  • 12/05/2023

    Expired on

  • Completed

    This project has been successfully funded

Group of researchers from the University of Coimbra who got together to run for hereditary ataxias (APAHE) in the European Marathon in Aveiro, on April 23, 2023.

Hello!

We are a group of researchers from the Center for Neurosciences and Cell Biology of the University of Coimbra who got together to run for hereditary ataxias in the European Marathon in Aveiro on April 23, 2023. We want to raise funds to support APAHE ( Portuguese Association of Hereditary Ataxias ), a national non-profit association whose objective is to defend and protect the interests of people with hereditary ataxias in Portugal.

And what are hereditary ataxias? These are degenerative and neurological diseases characterized by loss of coordination of voluntary muscle movements, whose symptoms progressively worsen. These diseases result from genetic defects, known as genetic mutations, which are inherited by one or both parents. Parkinson's disease and Friedreich's Ataxia are two examples of diseases of this type. One of these diseases, JDM ( Machado-Joseph Disease ) is studied by neuroscientists at our centre.

We appreciate any kind of donation you can make to reach our minimum objective of €500, through the crowdfunding that we are promoting, and whose revenue will go directly to APAHE:

For the bravest ones who want to join this activity in a more active way, they can join our team. To do so, simply register at the link https://events.globalsport.pt/ , where you can choose the modality you prefer: 5Km Walk, 10Km Mini Marathon, 21Km Half Marathon or 42Km Marathon.

In the registration process, they must enter the code WAXFBV in the box that appears on the left and says “Enter a team code”. In this way, they become part of our CNC Team - Center for Neurosciences and Cellular Biology.

IMPORTANT: The cost of registering for the marathon does not revert to this fundraiser. To do so, you will have to access our fundraising link so that you can make your donation to APAHE (in whatever amount you want) and thus help us reach the minimum fundraising goal of €500.

Can we count on you?

About the author

We are researchers in the Group of Genetic and Stem Therapies for the Brain of the Neurosciences and Cell Biology Center of Coimbra. We focus on the study of Machado-Joseph Disease, a rare and incurable neurodegenerative disease. This disease is also known as Spinocerebellar Ataxia Type 3 and it is by studying this disease that we intend to support APAHE.

To get to know us better and what we study, visit our pages:

https://cnc.uc.pt/pt/research-group/terapias-genicas-e-estaminais-para-o-cerebro

https://www.instagram.com/cnc.uc/

https://cnc.uc.pt/pt

Budget and due dates

We want this crowdfunding to be active during the remaining registration time for the Marathon and also after two weeks of it, so that everyone who wants to participate with us can also make a donation. We also want all people who are aware of the objective of this campaign, both before and during, and even after the Marathon, to be able to access this link to support this cause.

All money received through this crowdfunding will revert to the APAHE association, and none of the funds will be used for any other purpose.

  • Invest with
    5€ or more

    A huge thank you!

    A huge thank you from all the researchers at the Center for Neuroscience and Cell Biology!

    18 backers

  • Invest with
    10€ or more

    Digital diploma in support of this cause

    For each donation of €10 or more, we will send a personalized Digital Diploma, addressed to the person who made the transfer.

    28 backers

Thu, 21/11/2024 - 22:38

Tue, 16/05/2023 - 17:18

Payout completed

The raised funds have been transferred to the campaign owner

12/05/2023

Campaign ended

The campaign successfully raised the initial target

Mon, 24/04/2023 - 12:12

Atingimos 0s 500€, Yes!

Olá a todos! Atingimos ontem os 500€, e no dia da nossa Maratona! Muito obrigada a todos pelo apoio e por fazerem desta campanha um sucesso :) Claro que agora não podemos de...

Read more

Sun, 23/04/2023 - 14:17

100% reached

WE DID IT! We met our initial target but the fundraising can continue

Mon, 17/04/2023 - 13:28

Festejar os 50%!

Obrigada a todos pelo vosso contributo, já atingimos os 50% do nosso objetivo! Aqui fica uma fotografia do nosso último treino. Obrigada pelos donativos e pelas partilhas :)

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Sun, 16/04/2023 - 22:03

50% reached

We've just achieved half the target! The glass is now more full than empty ;)

Fri, 14/04/2023 - 11:47

Agradecimento aos 36% do nosso objetivo!

Olá a todos, Como podem ver, temos andado a treinar para a nossa Maratona! Queremos agradecer a todos os 26 apoiantes que até agora contribuíram com o seu donativo para es...

Read more

Fri, 14/04/2023 - 11:46

Agradecimento aos 36% do nosso objetivo!

Olá a todos, Queremos agradecer a todos os 26 apoiantes que até agora contribuíram com o seu donativo para esta causa! :) Já atingimos 36% do objetivo mínimo que temos, mas ai...

Read more

Wed, 12/04/2023 - 09:29

We're now 20

We reached the first 20 backers. Let's keep up!

Tue, 04/04/2023 - 17:13

First five backers

We've gathered the first 5 backers. Hurray!

Campaign launched

30/03/2023

Join us so you can take a part in this campaign. Register

  • Diana Adão

    Atingimos 0s 500€, Yes!

    Olá a todos!

    Atingimos ontem os 500€, e no dia da nossa Maratona! Muito obrigada a todos pelo apoio e por fazerem desta campanha um sucesso :)
    Claro que agora não podemos desistir de conseguir chegar a mais pessoas para angariar ainda mais fundos para a APAHE! Contamos convosco para espalharem a palavra e, se conseguirem que apenas um amigo vosso faça um donativo, são mais 54 donativos feitos. Parece fácil. Vamos lá?

    Ficam duas fotografias do dia de ontem em que, entre todos os cerca de 50 membros da nossa equipa, fizemos um total de 508km:
    75Km em Caminhada, 160Km na modalide de 10Km (Mini-Maratona), 147Km nos 21Km (Meia-maratona), e 126Km nos 42Km (Maratona).

    Obrigada :)

    Log in or register to post comments

  • Diana Adão

    Festejar os 50%!

    Obrigada a todos pelo vosso contributo, já atingimos os 50% do nosso objetivo!
    Aqui fica uma fotografia do nosso último treino.

    Obrigada pelos donativos e pelas partilhas :)

    Log in or register to post comments

  • Diana Adão

    Agradecimento aos 36% do nosso objetivo!

    Olá a todos,

    Como podem ver, temos andado a treinar para a nossa Maratona!

    Queremos agradecer a todos os 26 apoiantes que até agora contribuíram com o seu donativo para esta causa! :)
    Já atingimos 36% do objetivo mínimo que temos, mas ainda precisamos de bastantes outros apoiantes para lá chegar. Podemos contar convosco para continuarem a fazer chegar esta iniciativa de crowdfunding a amigos e conhecidos?

    Obrigada por contribuírem e por partilharem!

    Log in or register to post comments

  • Diana Adão

    Agradecimento aos 36% do nosso objetivo!

    Olá a todos,
    Queremos agradecer a todos os 26 apoiantes que até agora contribuíram com o seu donativo para esta causa! :)
    Já atingimos 36% do objetivo mínimo que temos, mas ainda precisamos de bastantes outros apoiantes para lá chegar. Podemos contar convosco para continuarem a fazer chegar esta iniciativa de crowdfunding a amigos e conhecidos?

    Obrigada por contribuírem e por partilharem!

    Log in or register to post comments

57 members of the PPL community
support this campaign

  • 51
    new backers

  • 6
    recurrent backers

  • 14
    anonymous backers

Meet the people helping this dream come true

  • Rui Carvalho

    06/05/2023 - 18:04

    Desejo muita persistência e sucesso! Grande abraço

  • João Filipe Pires Cotas

    28/04/2023 - 15:32

  • Rita Pinho

    27/04/2023 - 10:53

    Parabéns pela iniciativa, Hugo!

  • Daniel Henriques

    23/04/2023 - 14:17

  • Ricardo Moreira

    23/04/2023 - 14:10

  • Joana Bigares Grangeia

    23/04/2023 - 11:37

    Boa maratona!

  • Anonymous

    22/04/2023 - 22:19

  • Mariana Morgado

    22/04/2023 - 22:13

  • Anonymous

    22/04/2023 - 16:00

  • Mariana Costa

    22/04/2023 - 10:07

  • Anonymous

    22/04/2023 - 01:12

  • Luís Pereira de Almeida

    21/04/2023 - 22:29

  • Anonymous

    21/04/2023 - 22:25

    Força aí meninos, se for preciso mais, depois transfiro :*

  • Ana Carolina Silva

    21/04/2023 - 22:08

  • Anonymous

    21/04/2023 - 21:46

    Força a todos! Muita coragem.

  • António Ramos

    21/04/2023 - 21:44

    Desejo sorte a todos!

  • Anonymous

    21/04/2023 - 14:09

  • Sara Alves

    21/04/2023 - 07:04

    Que comecem a aplicar algum tratamento para as pessoas com DMJ para que a minha mãe consiga usufruir do tratamento. Obrigada por todo o trabalho desenvolvido.

  • Anonymous

    20/04/2023 - 11:56

  • Anonymous

    20/04/2023 - 00:56