Special kids
PPL Causas
  • Other
  • Valpaços , Portugal

Special kids

As the Portuguese are generally aware, social security does not finance this type of therapy. The reason why Social Security did not finance this type of therapy answered that t...

  • 1

    raised

    1% of 3 000€

    1 backer

  • 12/10/2020

    Expired on

  • Not funded

    This project was unable to raise the required funds

As the Portuguese are generally aware, social security does not finance this type of therapy. The reason why Social Security did not finance this type of therapy answered that they do not belong to the national health service, SNS.

António and Sónia Silva have three children. The two youngest Rafael, 12, and Melany, 2, have a rare genetic neuromuscular disease, Central Core Myopathy. The couple had to stop working to become caregivers for their two dependent children. Without state support, they call for solidarity to raise funds for rehabilitation therapies for both children, as it is the only way to fight the disease.

Married for 14 years, António and Sónia have always dreamed of having a family. The two emigrated to Germany, where they worked in the area of catering. They managed to realize the dream of being parents. The eldest son, Ruben, was born 13 years ago in Germany and has become the joy of the family. It was a perfect baby and the experience was so good that after two years they went looking for the girl.
Fate changed their lives and Sonia became pregnant with a boy again. This time, Rafael's pregnancy proved to be troubled. From the six months of gestation Sónia began to feel strong contractions. Against all expectations Rafael was born at 24 weeks, at 6 months. An authentic baby miracle.
In the first month of life, Rafael was connected to the machines in an incubator. Then the preterm was transferred to a pediatric hospital where he stayed for another five months. In addition to all the implications of a baby born prematurely, Rafael showed signs of lack of movement in his arms and legs. Doctors discovered that Rafael had a rare, neuromuscular genetic disease, Central Core Myopathy.
The couple and their two children returned to Portugal seven years ago. António and Sónia had to start from scratch, leaving behind: a prosperous business and a stable life in Germany. Sónia became Rafael's caregiver, while her husband opened a small restaurant. He started to be accompanied at the Maternal and Child Center of Porto, in orthopedics. The parents did everything for Rafael to have intensive physical therapy, speech therapy, in private clinics, since the state support was practically null.
A year ago, the couple had a girl, Melany, is 1 year and 2 months old. According to German doctors, this disease genetically inherited from the mother would not affect if it were a girl, only boys. After the girl was born, due to her medical history, doctors performed the tests to detect the disease. At 2 months they found out that Melany had the same disease as her brother Rafael. This came to shake the family again. «Two cases in the same family means surrendering to them and never letting your arms down»

About the author

Sónia (mother) thought to create this request for help in order to continue her children's therapies, she is a native of Valpaços and the only dream is to see her children walking on their own feet, nobody expects this to happen with a child of ours a it happened to two children who were born with the same rare disease, Sónia with 39 years old cannot work and social security does not support these cases, so she uses these projects to help her children have a better future

Budget and due dates

The final amount will revert in full to the payment of physiotherapies

  • Offer of a photo

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    Offer of a photo

    Gift of a photo of the two brothers as a souvenir

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    Keychain

    Offer of a key ring with the photo of the brothers Rafael and Melany

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    Souvenir teddy

    Teddy with siblings photo

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Thu, 09/12/2021 - 03:56

Wed, 14/10/2020 - 13:57

Payout completed

The raised funds have been transferred to the campaign owner

12/10/2020

Campaign ended

The campaign failed to raise the total amount

Fri, 18/09/2020 - 16:42

Precisamos da vossa ajuda

Olá a todos que estão a ver esta mensagem, pedimos pelos nossos filhos ajuda para poderem um dia com muito sacrifício conseguirem andar pelo próprio pé, são dois irmãos com a me...

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Campaign launched

28/08/2020

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  • Sónia Rodrigues

    Precisamos da vossa ajuda

    Olá a todos que estão a ver esta mensagem, pedimos pelos nossos filhos ajuda para poderem um dia com muito sacrifício conseguirem andar pelo próprio pé, são dois irmãos com a mesma doença, ajudem estes irmãos que so querem um dia poder andar, por favor ajudem, muito obrigado

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  • Anonymous

    18/09/2020 - 16:31

    Uma vergonha as pessoas não aderirem a estas causas, se fosse para animais não falta ajudas, é triste as pessoas verem isto e serem lhes indiferentes...